Fanconi Hope

General

  • Charity number:

    1126894
  • Registered charity name:

    fanconi hope
  • Last updated:

    6 December 2019
  • Registration location:

    PO1 9JG Map
  • Size (annual income):

    £10.00k
  • Category:

    • the advancement of health or saving of lives
  • Causes:

  • Volunteers:

    No data provided
  • Employees:

    No data provided
  • Membership ‚Ä®organisation:

    No
  • Charity shops:

    0
  • Trustees:

    2
  • Umbrella organisation:

    No
  • Offers group volunteering:

    No
  • Registered as charity:

    2008
  • Mission

    To support people across the UK affected by the rare genetic condition Fanconi Anaemia (FA), raise awareness, help improve standards of care and raise funds for research. FA is a very rare, inherited genetic condition causing bone marrow failure and cancers, with life expectancy around 35 years.
  • Brief history

    Fanconi Hope Charitable Trust was set up in 2008 by parents of affected children and clinicians with an interest in the condition, all on a voluntary basis, and with the Duchess of Devonshire as our patron. We support around 75 families across the UK and Ireland.

Ratings

Rate, add your comment or ask a question

  • question
  • comment

Minimum 20 characters including spaces

Publish