The majority of Fanconi Anaemia patients develop solid tumour cancers resulting in significantly reduced life expectancy.
Due to the fragility of these patients' DNA only low doses of Chemo and radiotherapy can be given, so surgery is the main option. Early detection is thus vital
New Proton Therapy potentially offers a safer option for killing solid tumours but its precise effects on FA patients' cell structure is currently unknown.
We are raising money for a project to study the use of Proton Therapy on FA patients. We are also setting up a European Umbrella Organisation to bring researchers and specialists together to develop optimum harmonised cancer management techniques.
Our impact video
IT Support to improve communications effectiveness
Support with claiming GiftAid
Reclaim at least this amount from previous donations
New website set up for our FA Europe Umbrella Organisation
Phone App developed to support FA patients across Europe
Improved cancer management for FA patients through our pan-European efforts
Improving life expectancy would have a dramatic impact on the wellbeing of the whole family not just the patient concerned.
To support people across the UK affected by the rare genetic condition Fanconi Anaemia (FA), raise awareness, help improve standards of care and raise funds for research. FA is a very rare, inherited genetic condition causing bone marrow failure and cancers, with life expectancy around 35 years.